Sophie Anne Seaman, 8

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While scleroderma most commonly occurs between the ages of 30 and 50, this disease doesn’t discriminate. It can affect anyone… even a 7-year-old child.

Sophie Anne Seaman was diagnosed with systemic scleroderma and Raynaud’s syndrome in December of 2019. Both conditions came with major life changes for someone so small, like:

  • Taking medications on a regular basis
  • Wearing gloves if it’s below 65 degrees
  • Rubbing cream into her hands each night
  • Going to therapy and doing exercises at home
  • Taking more precautions, as she’s more susceptible to getting sick
  • Missing school because of medical appointments

Still, Sophie stays positive, and she has a lot to be proud of. For example, she said, “I’m most proud of being brave for all of my blood work and medical tests. I cried the first time, but I don’t anymore.”