28
MAY
2020

Amy Gietzen, 38

Amy Gietzen was a recent high school graduate when she received her systemic scleroderma diagnosis. In the 19 years since then, scleroderma has drastically...
28
MAY
2020

Cheryl Magnussen, 60

Cheryl Magnussen lives on Vancouver Island, British Columbia. She was diagnosed with systemic sclerosis in the fall of 2019 after seven years of...
27
MAY
2020

Demeshia Montgomery, 38

At 19 years old, Demeshia Montgomery gave birth to twins: a boy and a girl. But tragically, her babies were born 27 weeks early – weighing in at only one...
27
MAY
2020

Dina Cox, 50

In 1989, Dina Cox’s scleroderma story began. At just 20 years old, she was diagnosed with limited systemic sclerosis. But because it was even more rare then...
27
MAY
2020

Dinah Chong Watkins

Soggy, wool mittens and paper-thin boots were all Dinah Chong Watkins had between her and the long, frozen winters growing up in Canada. Back then...
27
MAY
2020

Erion Moore II, 36

Like most scleroderma patients, Erion Moore had the disease long before he was diagnosed. But in his case, it took two years to confirm the condition...
27
MAY
2020

Jackie Latka, 52

In December of 2011, Jackie Latka’s life changed, as she was diagnosed with systemic diffuse scleroderma. At the appointment, her doctor asked if she knew...
27
MAY
2020

Jan Wiesen, 63

Jan Wiesen first received the “unusual and scary” diagnosis of scleroderma in 2009. Although she initially didn’t like to say the disease because she didn’t want...
27
MAY
2020

Jewel Medeiros, 50

In spring of 2016, Jewel Medeiros was struggling with more stressors than ever before. She had left the job she loved. She finalized her divorce. She sent...
27
MAY
2020

Kaila Lipford

Self-isolation, social distancing and a scleroderma diagnosis? For most people, 2020 has been an emotionally exhausting year. But for Kaila Lipford, it’s been...