Amy Gietzen, 38

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Amy Gietzen was a recent high school graduate when she received her systemic scleroderma diagnosis. In the 19 years since then, scleroderma has drastically changed Amy’s life.

It’s taught her to live a new way. To ask for help when she otherwise wouldn’t. To lean on others for tasks like tying her shoes, buttoning shirts, opening jars and chopping vegetables.

Amy, now 38, is immensely proud of how far she’s come. She’s more than a scleroderma patient. She’s an advocate, a board member, a public speaker and an influencer on social media. Amy has used her diagnosis and experience to spread awareness and positivity around scleroderma.

She remarks, “I have made a difference in the lives of people living with scleroderma, and that is what I am the most amazed and proud about!”