Scleroderma Awareness Month is a time for us to speak up and raise awareness for the scleroderma community. Scleroderma affects thousands across our nations, but there is evidence that it affects the African American community more severely. We’ll continue to be a voice for scleroderma, but we’ll also be a voice for social change, justice and equality for all. We’re here supporting you, and we’ll keep listening, learning and standing alongside you.

How much do you know about scleroderma? This autoimmune disease, which has no known cause or cure, causes hardening skin, stiff joints, digestive issues, lung scarring, kidney failure, and in the worst cases, death. This year, we want the world to know the face of scleroderma. That’s why we’ll be sharing the stories of real people with scleroderma on our website and on social media.

You can help by:

  • Accessing our toolkit of ready-made posts to share on social media
  • Telling friends and neighbors about scleroderma
  • Starting a fundraiser

Introduce those you know to the face of scleroderma today!

What is Scleroderma Aware?

Scleroderma Aware is an annual joint initiative of the Scleroderma Foundation, Scleroderma Canada and the Scleroderma Research Foundation to raise awareness of scleroderma around the world.

Know Where to Get Help.

For people with scleroderma, many forms of help are available: treatment centers, support groups, fundraising events, news on the latest research, downloadable resources and more. Go to any or all of the sites below to learn more.

We gratefully acknowledge corporate support from Boehringer Ingelheim, GmbH. and Actelion Pharmaceuticals US, Inc.