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HARD WORD. HARDER DISEASE.

We’ll make it easier for you. Help us make it easier for them.

LEARN MORE ABOUT SCLERODERMA

“Sclero” means “hard” and “derma” means “skin”. But hardening skin is just one of many symptoms scleroderma sufferers experience. Stiff joints, digestive issues, lung scarring,  kidney failure—all can result. And sometimes be fatal. Scleroderma is an autoimmune disease with no known cause and no cure.  Research is vital, but because so few people are aware of the disease, our researchers don’t always get the resources they need. Learn more about scleroderma. Help us get the word out.

SPREAD THE WORD.

Sign a pledge of support and share it.

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Sign a pledge of support and share it.

Take this pledge to make at least one person aware of scleroderma who wasn't before. Tell a friend, family member, your bank teller - tell anyone.

You can also help raise awareness by:

  • Participating in fundraising events and inviting friends to join you
  • Following scleroderma organizations on Facebook and Twitter, and sharing their posts
  • Sharing articles and news reports about scleroderma with others

 

 

DISCLAIMER: Your contact information will be shared with our three scleroderma partners: The Scleroderma Foundation, the Scleroderma Society of Canada and the Scleroderma Research Foundation.

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FIGHTING HARD

Scleroderma patients share their stories.

set1 Who We Are

This video features scleroderma patients and their loved ones, as well as Dr. Frederick Wigley, Director of the Scleroderma Center at Johns Hopkins University.

set2 Who We Are

Read these moving stories of scleroderma patients, from a three-year-old boy to a beloved grandmother who fought the disease for over 50 years.

set3 Who We Are

Learn more about scleroderma from those who have it, and from those whose loved ones have been affected (including actor Jason Alexander and football great Barry Sanders).

SCLERODERMA MAKES LIFE HARDER, ALL OVER.

Use this interactive body map from the Scleroderma Foundation to learn more about the effects of the disease. Select any body part to see how scleroderma affects it.

WholeBody Who We Are

GET HELP NOW.

For scleroderma patients, many forms of help are available: treatment centers, support groups, fundraising events, news on the latest research, downloadable resources and more. Go to any or all of the sites below to learn more.

SRF logo Who We Are

twitter Who We Are facebook Who We Are

SSC logo Who We Are

twitter Who We Are facebook Who We Are

SF logo Who We Are

twitter Who We Are facebook Who We Are